
Medical Informatics and Rare Disease: a bridge between two worlds
About this event
With more than 6,000 different diseases comprising the rare disease (RD) landscape, connecting patients and practitioners with the expertise needed to achieve the correct diagnosis can be a significant barrier to treatment.
Medical Informatics and Rare Disease: a bridge between two worlds is a webinar from pharmaphorum media focused on Healthcare. The event is scheduled for Friday, April 8, 2022. UPCOMING provides an independent event listing and directs attendees to pharmaphorum media's website to complete registration or viewing.
What you'll learn
- How the necessary routine and research data can be collected in registries in a further processable form by patients and healthcare professionals - Optimising and exploiting data for use in rare disease-specific research and studies - Analysing data spread across many health care facilities and patient registries in compliance with data protection



